NDIS Rights: consent, privacy & choice at every step

What consent, privacy, and choice mean in plain English

Consent means you say “yes” to supports after you understand what’s happening, why it’s needed, and any likely risks or alternatives. If you don’t feel comfortable, you can pause or refuse. Consent should be ongoing, not just a one-time form. In practice, it also means staff should explain things in a way you can understand (for example, using simple language, pictures, or asking if you’d like someone to support you).

Privacy means your personal information is handled respectfully and only shared when there’s a good reason and the right process is followed. This includes your health details, home address, disability support needs, and any notes about you. Providers should talk with you about what information they need, who they will share it with, and why. If something is unclear, ask. You can also request that communication is done the way you prefer (for example, calling you first before contacting others).

Choice means you can decide about your supports and how they are delivered—within what’s funded in your plan and what the provider is able to offer safely. Choice can include who supports you, what you do, where you go, and how often. If you want changes, you can ask for them. It’s a good idea to compare providers and their approach to rights and communication. My Care Finders can help you compare options so you can choose the provider that best fits your needs. If you use plan management, you may also want to check how supports are recorded and processed through MyMoney NDIS (www.planmanager.net.au).

Key takeaway: You have the right to be asked, informed, and treated respectfully—so supports should never start “without your say-so” (consent), your details should stay protected (privacy), and you should be able to choose what works for you (choice).

• Ask before: “Can you explain what you’re doing and why?”
• Pause or refuse: If you’re not comfortable, it’s okay to say “not right now”.
• Request control: Tell providers how you want information shared and who can attend meetings.
• Get it in writing: If possible, confirm agreed supports and changes to reduce confusion.