Rights to Privacy & Consent: Speak Up in Real Life

Rights in plain English: consent and privacy basics

Consent means you can say “yes”, “no”, or “not yet” to supports and services. It should be given freely, clearly, and after you’ve been told what will happen and why. For example, if a support worker is going to help you with personal care, handle your medication, or take you on an activity, they should explain the steps and check what you want before starting. If you change your mind, you can stop at any time. If you’re unsure, it’s okay to ask for the explanation again or ask for an option that feels safer or more comfortable.

Privacy means your personal information is treated as confidential. This includes your health information, NDIS plan details, contact details, and anything you tell staff in confidence. Your provider should only share your information with people who need it for your supports, and they should explain who they will share it with and why. If you use assistive technology or devices, ask about who can access your information and what security steps are in place. You also have the right to be treated respectfully during appointments and when documentation is handled.

Key takeaway:

“You’re in control—no support should happen without your consent, and your personal information should only be shared for your support.”

When planning or choosing a provider, use these questions: Do they ask for consent each time support is needed? How do they record your choices? What privacy measures do they use? How will your information be stored and who can access it? If you’re comparing providers, My Care Finders can help you look at what’s offered and what to ask before you commit. If you manage your funding through plan management, such as MyMoney NDIS (www.planmanager.net.au), ask how invoices and reports are handled and what information is shared for payment and reporting.

• Ask: “Can you explain what you’re doing and what choices I have?”
• Say: “I don’t consent to that part” or “Let’s pause” if you’re not comfortable.
• Ask: “Who can see my information, and why?” before any paperwork is shared.