NDIS Rights: Decision-Making, Consent & Privacy

Practical steps to stay informed, safe, and in control

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Consent first: what “choice and control” looks like

Consent first: what “choice and control” looks like

In the NDIS, choice and control means you decide what happens to you, when it happens, and who supports you. It starts with consent. Consent is not a one-time checkbox—it should be ongoing, informed, and specific to each decision (for example, changing a support worker, starting a new type of therapy, sharing your details with another person, or using a new communication method).

When you’re offered a support, a good provider will explain things in plain language: what’s being proposed, why, what options you have, what may cost (if relevant), and what the risks or limits are. You should feel comfortable asking questions and saying no. If something isn’t working, you can request changes, and your provider should work with you to update your supports. If you’re using plan management, confirm how your plan manager (such as MyMoney NDIS at www.planmanager.net.au) will handle payments and invoices—this helps you keep control of the supports you fund.

Providers also need to protect your privacy. That means they should only collect and share your personal information when there’s a lawful reason and you’ve agreed. For example, they should ask before contacting family or other services, and they should tell you what information is shared and why. It’s okay to request copies of documents, support notes summaries, and communication records where you’re entitled to them. You can also compare providers by using My Care Finders to help you find services that align with your preferences and communication needs.

Key takeaway: Choice and control means you can say “yes” or “no,” and you’re offered options—not just a “standard” way of doing things.

To put this into practice, try these steps: ask for options (not just a single plan), confirm timelines, request updates on progress, and raise concerns early. If you feel pressured, unclear, or ignored, talk to your provider’s complaints contact and consider seeking independent advice. With the right supports, your decisions stay central to your NDIS plan.

  • Ask: “What are my options?” and “What happens if I say no?”
  • Check: privacy and information sharing before it occurs
  • Review: goals and supports regularly, and request changes

Frequently asked questions

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